Tag Archives: Congenital heart disease

CHD Support Groups

CHD Support Groups

CHD Info
An informative resource on Congenital Heart Defects with detailed articles on each form of CHD. 

Congenital Heart Disease Information and Resources 
CHIN contains a tremendous amount of information on resources concerning congenital heart disease

Adult Congenital Heart Disease Forum
Adult Congenital Heart Disease Forum is a site devoted to birth defects of the heart in adult patients.

Kids With Heart
A large CHD support organization managed by Michelle Rintamaki and with volunteers across the US.

Adult Congenital Heart Association
A new support organization for adults with CHD

Little Hearts
A New England network of families of children with CHD


What Causes Congenital Heart Defects?

causes congenital heart defects

Despite much research, in the majority of cases, Congenital Heart Defects (CHD) occur without any known cause. This is one reason the incidence has remained fairly constant at 7 to 8 cases per 1000 live births over decades, while other forms of heart disease have been declining in frequency.

We know the causes of some forms of congenital heart defects (CHD).

Environmental Insults

During pregnancy, some events are known to be associated with an increased risk for CHD.


The Heart – An Introduction

The Heart - An Introduction

Welcome to the virtual ‘Heart School’

The heart is a fascinating organ.

From the moment it begins beating, until it finally stops, the human heart works without a break. In a life-span of seventy years, the heart beats more than two and a half BILLION times, without ever pausing to rest.

And as it beats, it preserves LIFE.

No other organ has caught the imagination of painters and poets alike. Let danger threaten, and the thrilling heart skips a beat, and tight-rope walks arrhythmically. And all the while, we feel it, hear it even – WE, its stage and its audience.

It was not the livers or brains or entrails of saints that were lifted from the body in sublimest autopsy. It was the heart they cradled into worshipful palms, then soaked in wine and herbs and set into silver relinquaries for the veneration of the faithful.

It follows quite naturally that Love should choose such an organ for its bower. When Love blooms therein, the heart dances – and is lost to the loved one!

The heart has from time immemorial been surrounded by an aura of mystery and awe. Although some of this has been dispelled by the “cold reality” of modern science and technology, which has unravelled the mechanics of the heart, the air of fascination and wonder that the heart inspires in man has not diminished.

So JOIN ME THEN, and we will explore this wonderful organ….

  • Discover the complexities of its structure and function….

  • Journey down the blood stream and experience the efficiency of the circulation….

  • See how diseases of the heart are detected….

  • Marvel at the miracle that is “Open Heart Surgery”….

  • Learn about the people who make it happen….

  • Understand all about the different defects of the heart, and how they are treated.

And soon I hope your fascination and curiosity will turn into understanding and respect for this magnificent work of creation called THE HEART!

I’ll present to you the best the Internet has to offer about the heart.

You’ll have the chance to learn all about the intricate make up and function of the human heart. I will explain, with the help of pictures and photographs, how the heart looks and works… its chambers, walls, valves and blood vessels, the way it works to maintain life, and much more – all in the simplest language possible.

The articles you’ll find here are:

And as you begin to appreciate the great complexity of this wonder of creation, it will become obvious that damage and defects of the heart are indeed quite likely.

How does the “medicine man” know what is wrong with someone’s heart? Magic? Intuition? Guesswork? 

No, No, No!

It’s science, and highly advanced and technical stuff, at that. In the HEART LABORATORY you will read all about the tests doctors run to detect heart disease – from simple ones like an X-ray or EKG to the more esoteric ones like MRI and Isotope testing.

Although there are literally hundreds of diseases that can affect the heart, they may all be conveniently grouped under just FOUR major heads – CONGENITAL, VALVULAR, ISCHEMIC and CARDIOMYOPATHY. Over the past four decades, the science of repairing heart defects has evolved into a fine art.

And as science advances, doctors are trying their best to make treatment simpler, less painful, more successful and less expensive.

So if you’re ready to begin an exciting voyage to understand the heart, let’s get started.

Begin your journey here – click to read


Truncus Arteriosus

Truncus Arteriosus

What is Truncus Arteriosus ?

Truncus arteriosus is a rare complex birth defect of the heart in which only one artery leaves the heart, instead of the normal pattern where two great arteries – the aorta and the pulmonary artery – carry blood away from the heart.

In truncus arteriosus, a single large arterial trunk arises in common from both the right and left ventricles. It then divides into the aorta and pulmonary artery, after first giving off coronary artery branches.

The method of branching allows the classification of truncus arteriosus into three types.


Single Ventricle

Single Ventricle

What is the heart defect called Single Ventricle ?

While the normal heart has two ventricles, in some birth defects, one of these ventricles may be absent or poorly developed. This condition is called Single Ventricle or Univentricular heart.

The ventricular structure may resemble the normal left ventricle or the normal right ventricle. Sometimes, it resembles neither, and this is called Indeterminate ventricle morphology.

In a single ventricle heart, there are two normal atria – right and left. These open into the ventricle through an atrio-ventricular (AV) valve. There might be
two AV valves, both opening into the ventricle – a condition called Double Inlet Ventricle – or one AV valve only, with the other one being absent (Atresia)

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